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HR 3491Jul 20, 2026Passed Chamber

What a yes vote endorsed

DeOndra Dixon INCLUDE Project Act of 2025

What this does

The bill amends the Public Health Service Act to direct the Director of the National Institutes of Health to carry out a program of research, training, and investigation on Down syndrome, named the INCLUDE Project. It lists the research the program must include, ranging from the effects of trisomy 21 on human development to co-occurring conditions such as Alzheimer's disease. It requires NIH to coordinate its Down syndrome work across its institutes and to prioritize research that does not duplicate existing NIH activity. It requires NIH to consult relevant stakeholders, including patient advocates, and to report to congressional committees on a biennial basis on the research conducted under the section.

Passed the House by voice vote

How we know · 6 sourced claims
  • The bill amends the Public Health Service Act to add a new section directing the Director of NIH to carry out a program of research, training, and investigation on Down syndrome.Source: Sec. 2 (409K(a))
  • The program is named the INCLUDE Project.Source: Sec. 2 (409K(a))
  • The bill lists required research elements, ranging from the effects of trisomy 21 on human development to co-occurring conditions such as Alzheimer's disease.Source: Sec. 2 (409K(b))
  • It requires NIH to coordinate its Down syndrome programs across its institutes and to prioritize research that does not duplicate existing NIH activity.Source: Sec. 2 (409K(c))
  • It requires NIH to consult relevant stakeholders, including patient advocates.Source: Sec. 2 (409K(d))
  • It requires NIH to report to congressional committees on a biennial basis cataloging the research conducted under the section.Source: Sec. 2 (409K(e))
Read the bill on congress.gov ↗

Reported lobbying

At least

2

organizations named this measure in a lobbying filing.

A floor, not a total. Those organizations were counted by the client name on 14 quarterly reports filed by 2 registered lobbying firms in 2025 Q1, 2025 Q2, 2025 Q3, 2025 Q4, 2026 Q1 and 2026 Q2. The disclosure form takes a free text description of the issue, so an organization that lobbied this measure without naming it is not counted here.

1 of those filings did not cite this bill by number. They named a short title it shares with its Senate companion, S 1838, so the reference belongs to the pair rather than to one chamber’s vehicle.

The filings record that lobbying was reported on the measure. They carry no per-bill dollar figure and no position, so nothing here says how much was spent or which side an organization took.

The organizations named

  • GLOBAL DOWN SYNDROME FOUNDATION
  • ALZHEIMER'S ASSOCIATION

Listed as filed. They are every client name on the filings counted here.

From the LD-2 quarterly lobbying filings published at lda.gov by the Senate Office of Public Records. Read for 2025 Q1, 2025 Q2, 2025 Q3, 2025 Q4, 2026 Q1 and 2026 Q2. The pull came up 2 short in 2025 Q4 and 7 short in 2026 Q2 against the register's own count, so those quarters are the filings posted rather than every one filed. 2026 Q3 is still inside its filing window, so that quarter is only the filings posted so far.